Together We Can
Help us rewrite the future for children afflicted with de novo spastic paraplegia - a swift and severe neurodegenerative disease.
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About Us
Learn more about our work, our team, and some of the resilient children battling
this devastating disease. -
About SPG4
Find out more about spastic paraplegia, SPG4, and how a SPAST mutation impacts the body.
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Research
Read more about the promising projects and research for a treatment or cure.
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Donate Now
Support the Foundation and make a difference today in the lives of children battling this swift and severe disease.
Time is not on our side, but we hope you will be.
The Lilly and Blair Foundation is dedicated to improving the lives of children with de novo spastic paraplegia through collaboration with top scientists and funding of promising research. There is currently no treatment or cure for this swift and severe neurodegenerative disease. Learn more and donate now.
Learn more about The Lilly and Blair Foundation, including our story, our mission, and how you can help rewrite the future for the incredible children battling de novo SPG4.
The Lilly and Blair Foundation's Washington Post Live interview for Rare Disease Day alongside FDA Commissioner Califf and Cure Rare Disease Founder Rich Horgan. (Feb. 2024)
The Lilly and Blair Foundation's remarks from our 2024 Golf Tournament and Dinner. (June 2024)
