ANNUAL GOLF TOURNAMENT
AND DINNER
Friday, May 29
Westfields Golf Club | Clifton, VA
Thank You for an Incredible Day
Our 4th Annual Golf Tournament and Dinner was a sold-out success, bringing together sponsors, golfers, donors, volunteers, and supporters united by one goal: accelerating research for children living with SPG4.
Thanks to this incredible community, we met our fundraising goal, unlocked a $20,000 matching gift, and continued building momentum toward treatments for children like Lilly and Blair.
Together, we also celebrated a remarkable milestone—more than $1 million raised since the Foundation was launched. Those dollars are driving gene therapy development, preclinical research, clinical readiness efforts, and the global collaborations needed to move potential treatments closer to families.
Thank you to everyone who played, sponsored, donated, volunteered, bid in the silent auction, and helped make this event possible. Check back soon for next year’s date!
The Momentum Continues
Join us for our upcoming events:
5K Run, Roll and Stroll
Sunday, September 13, 2026
Clemyjontri Park | McLean, VA or Virtual
Winter Benefit
Friday, November 13, 2026
Birkby House | Leesburg, VA
Space is limited.
Thank You, Sponsors
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Gold Sponsor
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Bronze Sponsor
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Silver Sponsor
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Beverage Cart Sponsor
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Golf Cart and Golf Balls Sponsor
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Longest Drive Sponsor
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Community/Hole Sponsor
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Community/Hole Sponsor
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Community/Hole Sponsor
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Community/Hole Sponsor
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Community/Hole Sponsor
Thank You, Corporate Partners
The Lilly and Blair Foundation is committed to ensuring all programs and events are open to individuals who meet participation criteria, without regard to race, gender, ethnicity, or other protected characteristics.
What happens next depends on how quickly we move.
Your support accelerates progress toward real treatments for children with SPG4.